Programs
Newborn Hearing
Parents have many questions when they learn their child has hearing loss. Many resources are available to parents whose child has been diagnosed with hearing loss, including the help and support provided by your child’s audiologist, primary care provider (PCP) and other parents who have children with hearing loss. Education and support are important for your child’s future learning, social, and emotional well-being.
Intervention & Family Support Services
View the Intervention and Family Support Services resources and information.
Government Agencies Websites
Find further information about government agencies’ websites.
Kansas Resource Websites
Review a list of Kansas resource websites.
Professional Associations Websites
Discover a list of professional associations’ websites.
Review the Kansas Guidelines for Hearing Screening (PDF) for Kansans ages birth to 21.
Joint Committee on Infant Hearing (JCIH)
The National Center for Hearing Assessment and Management (NCHAM)
Additional Resources
Kansas Resource Websites
- Families Together – We are dedicated to a society that includes, and values all people, encourages, educates, and empowers families that include child/youth disabilities.
- Infant-Toddler Services – To enhance the development of infants and toddlers with disabilities, to minimize their potential for developmental delays, and to recognize the significant brain development that occurs during the child’s first three years; To enhance the capacity of families to meet the special needs of their infants and toddlers with disabilities.
- Kansas Commission for the Deaf and Hard of Hearing – KCDHH helps state agencies, hospitals, law enforcement organizations, court and business locate professional interpreters.
- Kansas School for the Deaf – A school, a community, a society in which hearing acuity is incidental, barriers are minimized, human potential is maximized and people are judged by their contributions and their character.
- Kansas Speech-Language-Hearing Association – Empowers and supports audiologists, speech-language pathologists, and speech, language, and or hearing scientists and to advocate for persons with communication and related disorders.
- Special Health Services – The program is responsible for the planning, development, and promotion of the parameters and quality of specialty health care for children and youth with disabilities in Kansas in accordance with state and federal funding and direction.
- WIC Program – WIC is a nutrition program that provides nutrition and health education, healthy food and other services to Kansas families who qualify. WIC stands for Women, Infants, and Children.
Intervention & Family Support Services
- The Alexander Graham Bell Association for the Deaf and Hard of Hearing (AG Bell) – International nonprofit membership organization, support network, and resource center on pediatric hearing loss and spoken language approaches and related issues.
- American Society for Deaf Children – A national organization of families and professionals that helps create opportunities for children who are deaf and hard of hearing to gain full communication access, particularly through the use of sign language.
- Better Hearing Institute – Provides comprehensive information on hearing loss, tinnitus, and hearing aids, as well as a directory of hearing care providers (audiologists, hearing instrument specialists, and otolaryngologists).
- Boys Town National Research Hospital – Clinical and research programs focusing on childhood hearing loss. The website’s “Knowledge Center” provides information and resources on hearing loss including podcasts, articles, and forums.
- Bright Futures at Georgetown University – The mission of Bright Futures is to promote and improve the health, education, and well-being of infants, children, adolescents, families, and communities.
- Centers for Disease Control and Prevention (CDC) – The Centers for Disease Control and Prevention is a United States federal agency under the Department of Health and Human Services. An online resource that gives you information about hearing loss and Communication options.
- Council on Education of the Deaf – This site facilitates information sharing and collaborative activities within the field of deaf education
- The Family Village – Provides a global community that integrates information, resources, and communication opportunities on the Internet for persons with cognitive and other disabilities and for their families.
- Hands and Voices National – Nonprofit, parent-driven organization that provides support to families with children who are deaf or hard of hearing. Includes links to individual state chapters.
- Hereditary Hearing Loss – Aims to give an up-to-date overview of the genetics of hereditary hearing impairment for researchers and clinicians working in the field. This site lists data and links for all known gene localizations and identifications for nonsyndromic hearing impairment.
- Laurent Clerc National Deaf Education Center – Provides information on various topics related to deafness, including topics of interest to parents of children with hearing loss and multicultural issues.
- Marion Downs Hearing Center – The Center provides resources, education, and research to support the needs of individuals who are deaf and hard of hearing, their families, the community, and hearing health professionals.
- Maternal and Child Health Bureau Homepage (HRSA) – The official website for the Health Resources and Services Administration’s (HRSA) Maternal and Child Health Bureau.
- Maternal and Child Health Library – An online resource for frequently updated reports regarding Maternal and Child Health issues.
- My Baby’s Hearing – Babyhearing.org has been created to answers parents’ questions about hearing screening and follow-up testing, steps to take after diagnosis of hearing loss, hearing loss and hearing aids, language and speech, and parenting issues.
- National Association of the Deaf (NAD) – Provides information on programs and activities including grassroots advocacy and empowerment, public awareness, deafness-related information, legal assistance, and policy development.
- National Center for Hearing Assessment and Management – Provides information on newborn hearing screening programs, legislation, equipment, and other works.
Professional Associations Websites
- American Academy of Audiology – Provides consumer and professional resources related to hearing care.
- American Academy of Family Physicians – A national medical organization of more than 93,000 members (family physicians, family practice residents, and medical students).
- American Academy of Otolaryngology-Head and Neck Surgery – Organization of physicians dedicated to the care of ear, nose, and throat disorders. This site provides health tips and information related to hearing disorders. It also provides a tool to find otolaryngologists throughout the United States and Canada.
- The American Academy of Pediatrics Newborn and Infant Hearing Screening – Provides information and resources on newborn hearing screening and hearing loss in infants and young children including articles, videos, fact sheets, and training materials.
- American Speech-Language-Hearing Association (ASHA) – Provides information for the public, professionals, and students about communication and communication disorders.
- Hearing Loss Association of America – The Association seeks to open the world of communication for people with hearing loss through information, education, advocacy, and support.
- Joint Committee on Infant Hearing – Made up of representatives from national organizations dedicated to ensuring early identification, intervention, and follow-up care of infants and young children with hearing loss. Since its establishment in 1969, JCIH has issued position statements with guidelines for early hearing detection and intervention. The JCIH website provides copies of these position statements as well as other information on the Early Hearing Detection and Intervention (EHDI) initiative.
- National Center for Cultural Competence (NCCC) – Mission is to increase the capacity of health care and mental health care programs to design, implement, and evaluate culturally and linguistically competent service delivery systems to address growing diversity, persistent disparities, and to promote health and mental health equity.
Government Agencies Websites
- Agency for Healthcare Research and Quality – An independent panel of experts in primary care and prevention that systematically reviews the evidence of effectiveness and develops recommendations for clinical preventive services.
- Centers for Disease Control and Prevention (CDC) – The Centers for Disease Control and Prevention is a United States federal agency under the Department of Health and Human Services. An online resource that gives you information about hearing loss and Communication options.
- Health Resource Services Administration (HRSA) – Provides information about children with hearing loss and Universal Newborn Hearing Screening programs.
- National Institute on Deafness and Other Communication Disorders – Federal government’s focal point for biomedical and behavioral research in human communication. The website provides information about hearing, ear infections, and deafness.
- National Library of Medicine (NLM) Newborn Screening Coding and Terminology Guide – Includes standard codes and terminology for newborn tests and the conditions for which they screen, and links to other related sites.
- The Office of Special Education and Rehabilitative Services – OSERS supports programs that help educate children and youth with disabilities, provides for the rehabilitation of youth and adults with disabilities, and supports research to improve the lives of individuals with disabilities.
Late Onset Hearing Loss Brochure
Deaf & Hard of Hearing Toolkit
Chapter 4 - Early Intervention
Chapter 6 - Resources and Family Support
Chapter 7 - Late Onset Hearing Loss
Hearing Parent Resource Guide
Chapter 3 - Educate Yourself Further
- Educate Yourself Further
- Why Do We Need Hearing Aids
- How HAs Work
- Care Tips for HAs
- Hearing and Listening Check
- Keeping Hearing Aids On
- Possible Issues with HAs
- Tips for Helping Your Child Hear
- Hearing Development Milestones
- Speech and Language and Hearing Milestones
- Strategies for Parenting
- Advice from Moms of Children with Hearing Loss
- FAQs About Hearing Loss
- Common Terminology
Chapter 4 - Next Steps
- Next Steps
- People You Will Meet Along Your Journey
- Building Your Team
- Questions You May Ask Your Child’s Medical Professional
- Questions You May Ask Your Child’s Early Intervention Team
- Questions You May Ask Your Child’s Cochlear Implant Team
- Questions You May Ask Your Child’s Speech-Language Pathologist
- Questions You May Ask Your Child’s ENT
- Questions You May Ask Your Child’s Genetics Counselor
- Make a Plan for Your Child
- Advocating for Your Child
- Support Groups in Kansas
- Kansas Family Support Group
- Genetic Testing
- Genetics Parents Guide
Chapter 6 - Journal Logs and Resources
- Cochlear Implant Centers
- Community Resources
- Contact Log
- Doctor Appointment
- Family Notebook
- Funding Resources
- Hearing Instrument Use and Response Log
- Journal Logs Tests Title Page
- Keep a Journal
- KS Family Support & Engagement
- National Organizations and Support Groups
- National Resources
- Resources in Kansas
- Website Resources