Birth Defects Family Support,
Some babies with birth defects may need access to specialized health services to help them grow. They may be eligible for services through the Kansas Special Health Care Needs Program (also known as KS-SHCN) and Infant-Toddler Services (Tink-K programs) found in their communities, as listed in the resources below. Other programs throughout the state provide new or expectant parents with resources to keep themselves and their children safe, healthy, and nurtured.
To find a program near you, call your local health department.
Support services:
- American Cleft Palate-Craniofacial Association (ACPA)
- La Leche League of Kansas
- Down Syndrome Society of Wichita
- Kansas Down Syndrome Medical Care Centers | Global Down Syndrome Foundation
- Compassionate Friends
- Families Together, Inc.
- Kansas Infant Death & SIDS Network
- MISS Foundation
State offered services:
- Special Health Care Needs | KDHE, KS
- Kansas Infant-Toddler Services
- Kansas Home Visiting
- 1-800-CHILDREN
National websites:
- Center for Disease Control and Prevention (CDC) Birth Defects Homepage
- National Birth Defects Prevention Network (NBDPN)
- MotherToBaby
- The Society for Birth Defects Research and Prevention
- AED Pregnancy Registry
- International Clearinghouse for Birth Defects Surveillance and Research (ICBDSR)
For more information: