Programs
Notifiable Conditions
K.S.A. 65-1,241 thru 65-1,246 requires “each physician, hospital and freestanding birthing center to report to the system information concerning all patients under five years of age with a primary diagnosis of a congenital anomaly or abnormal condition.” A comprehensive list of congenital anomalies or abnormal conditions may be found in K.A.R. 28-4-520 and K.A.R. 28-4-521.
Comprehensive list of congenital anomalies or abnormal conditions may be found in the Birth Defects Surveillance Reporting Manual.
Reporting Procedure
Birth defects can be reported via an electronic birth certificate (E.B.C.) or stillbirth certificate submitted to The Office of Vital Statistics. If your facility participates in the Kansas Health Information Network for the Notifiable Conditions Registry, birth defects may be electronically submitted to the Birth Defects Information System.
If a birth defect is diagnosed or recognized outside of the birthing center, the condition can be reported via the Birth Defects Reporting Form, and faxed to 785-559-4280.
If a child’s parent or legal guardian would like to remove information identifying a child from the registry, such requests can be submitted in writing via the Birth Defects Removal Form, and securely faxed to 785-599-4280.
Referrals
Various programs exist throughout the state to provide new or expectant parents with resources to keep themselves and their children safe, healthy, and nurtured. Children diagnosed with one of these birth defects, listed below, are connected to the appropriate supports and services through the Special Health Care Needs and Kansas Early Childhood Development Services (Part C – Infant/Toddler) programs.
- Anencephalus (Q0.00-Q00.1)
- Spina Bifida without Anencephalus (Q05.0-Q05.9, Q07.01, Q07.03 w/o Q00.0-Q00.1)
- Atrioventricular Septal Defect (Endocardial Cushion Defect) (Q21.2)
- Common Truncus (Truncus Arteriosus, or TA (Q20.0)
- Hypoplastic Left Heart Syndrome (Q23.4)
- Tetralogy of Fallot (Q21.3)
- Total Anomalous Pulmonary Venous Connection (TAPVC) (Q26.2)
- Transposition of the Great Arteries (TGA) (Q20.3, Q20.5)
- Cleft lip with cleft palate, cleft lip alone, cleft palate alone (Q37.0-Q37.9, Q36.0-Q36.9, Q35.1-Q35.9)
- Gastroschisis (Q79.3)
- Limb Deficiencies (Q71.0-Q71.9, Q72.0-Q72.9, Q73.0-Q73.8)
- Trisomy 21 (Down Syndrome) (Q90.0-Q90.9)
For more information on resources and services available for families, click the button below.
Meaningful Use (Promoting Interoperability Program)
Formerly referred to as Meaningful Use, the Promoting Interoperability Program encourages eligible professionals (EPs), eligible hospitals (E.H.s), and Critical Access Hospitals (C.A.H.s) to adopt, implement, upgrade, and demonstrate meaningful use of certified electronic health record technology (CEHRT). Reporting birth defects is a Meaningful Use activity.